Communications of the ACM
Companies Seek to Pool Medical Records to Create Coronavirus Patient Registry
Software and healthcare companies are seeking to create a registry of COVID-19 patients.
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Software and healthcare companies are seeking to create a registry of COVID-19 patients by gathering medical records from across the country.
The goal is to understand how the disease is spreading, which population groups are the most vulnerable, and how effective proposed treatments are.
Medical data company Datavant launched one such effort in late March, and has since received data from healthcare technology companies Allscripts Healthcare Solutions and Change Healthcare.
Datavant's proposed registry would be free for government and academic researchers to access, and would aim to include every patient who has been tested for COVID-19.
The registry would not give out patient names or other identifying data, but would include detailed information about their past and current conditions and medications.
Researchers would be able to use the data to study a range of questions about the illness, such as the effectiveness of certain treatments.
From The Wall Street Journal
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